"To live would be the best adventure
Peter Pan, JM Barrie
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| Héctor García Caballero, May 26, 2010 |
Maybe I'm not the best candidate, probably has probably someone better, and I know there are people with multiple sclerosis very valuable to expect something to happen to start doing something, and I tell them they have to wait: if something they want to do, do so immediately, without fear for a failure or not reaching the expectations, says Diego Torres " worth a miss, never em boats ", because what makes us live is just that, doing things with the heart and without fear, regardless of our disability or title.
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| Ana Silvia, Mariano and I the day I turned 46. October 18, 2009 |
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| Mariano and I, the day he finished his kindergarten year in 2009. |
always answer in my post I appreciate the feedback, because it allows me to be critical of myself, to improve or avoid errors, and now I think will greatly appreciated.
Background
Each year, the Multiple Sclerosis International Federation (MSIF), calls for participation by international awards that recognize and encourage people working for the cause of multiple sclerosis (MS).
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| Some people in our association ZOE Morelos Multiple Sclerosis , the end of the IV National Meeting of MS in Puebla. October 2009. |
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| Stand from left to right: Alicia Fernandez, Polo Zermeño-director of public relations-ZOE, Ana Silvia Barajas, my wife and president of Zoe, "Dr. Victor Caballero Solano, Secretary of Health of the State of Morelos, Julia Doris Flores-secretary ZOE, "and Faivel Polichuk, my dear friend and advisor of our association. Leading I am in a wheelchair. |
Every two years, presents the award James D. Wolfensohn to someone with MS who have an attitude and outstanding work in the area of \u200b\u200bsupport, management and dissemination in multiple sclerosis.
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| radio program "Giving value to the Valuable has sent several programs in conjunction with our partnership ZOE. In the photo, the issue of August 31, 2010, Ana Silvia along Adrian Clements and Dr, Maru Deaf-audiological center "Listening Well" -, and standing on the right, Lizbeth Cervantes de Anda, creator and host of radio program. |
The caregiver who competes for the Nicholson Award must be a person who receives no salary and you may have family relationship with the caregiver, or that only one caregiver relationship, but the merit is that not only provide primary care and help us-who have MS-food issues, health or medical treatment, but also help us to be active, to continue having a normal life (as possible) and share with us interest in ensuring that the world fight against MS.
Portraits
few years ago, I heard a man say he was born several times. He said that was reborn when he recovered from an accident that made him a disabled person. Then born again when he joined his life to his wife.
That man called Jorge Font.
I want to take and copy your idea.
I want to take and copy your idea.
I've born several times. My life is divided into before and after age 19, and then several times I have had small rebirths over well tell me 'reinvented' several times.
The time that I've reinvented in a more intense was when I found that my words helped others, which speak only could change the mood and the lives of others. I was reborn when I found a way to serve.
In 6 years, my new life has changed in me, but more important is that I'm stronger than before, no change in my health, engaged in meaningful tasks and working.
I have a blog where with the help of my wife write some things that come to mind, sometimes related to MS, sometimes with disability, and sometimes just with life.
But after I published this blog, I receive messages, calls and even personal visits from people asking me opinions that wants to tell their stories or just want to know.
I say that I have inspired some, if I can do things even when I'm not moving, then there is no excuse for surrender.
And it's not false modesty, because in reality do not quite believe it, I do not feel special when I do things, when I live another day, but I have as many stories of people tell me I meant something to them or their families.
On the formal side of that communication, I asked my wife to help me create an organization that assists people with MS, and one thing led me to another: I've learned about human rights, I have met remarkable people that I also have inspired and in general, I've grown a lot as a human being.
my life I assumed that was already on the countdown. That MS would be less long my stay in the world. The bad information or little information I got from a general practitioner in MS, I sowed some doubts about how long he could live.
my life I assumed that was already on the countdown. That MS would be less long my stay in the world. The bad information or little information I got from a general practitioner in MS, I sowed some doubts about how long he could live.
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| In this picture you see when hereunto set my mark in my condemnation voluntary; the day I married Ana Silvia. October 30, 2008. |
said that if others read about my life with MS may be identified, for example a mother or brother might find similarities with his family diagnosed, and thus not feel so alone. I
Hector Garcia Caballero. I have multiple sclerosis since 1983.
Hector Garcia Caballero. I have multiple sclerosis since 1983.
'm quadriplegic. I need help for everything I do, but that has not stopped me to continue learning and working. My goal is that more people know about multiple sclerosis, people of all kinds, and thus improve the quality of life of those who have the disease.
Multiple Sclerosis Association Mexico AC (EMMEX) I entrusted the task of representing people with MS in my country, and that has given me new experiences and broader horizons to achieve my goals.
This is my story
One day in 1983, at age 19 while he was driving, my left arm off the wheel and fell at my side. I could not lift it until you spent a few minutes. It repeated the loss of strength and the passage of time increased until I could not move at all and lost the sensitivity: the only thing that my arm was reacting cold or heat but could not see or forms or textures. I was hospitalized a month but there was no diagnosis and when my arm was recovered back to my activity.
I attended my career and even thought about the possible causes of my disorder, I never gave importance, until shortly before they began to fail my degree my legs. The heat was my enemy. My left leg was not the right step. My body is not kept vertical, and the recurrence of symptoms led me back to the neurologist.
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| in 2004. |
One day I stopped going to the veterinary clinic where she received my patients where I made many friends and where I spent several years of my life.
I recruited in an apartment in Mexico City. I lived with my mother and seasons were there some of my nephews or my sisters.
discovered I had a lot of free time and apart from television, I was only the internet to take care. With what little he could move his fingers on the computer and with slow LAN connection was used the phone line, could visit some websites, find photos, occasionally see and-best videos, chat with other people.
But my talks had little to do with MS. Occasional contacts with someone with MS, but no ties deepened do not fall within the subject.
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| Dr. Teresa Corona, director of the National Institute of Neurology |
Dr. Teresita Crown, acting director of the National Institute of Neurology and Neurosurgery was my doctor in Mexico and we were just learning the wonders provided the magnetic resonance imaging. Few had been diagnosed with multiple sclerosis after we did an MRI.
It was almost 1989. This time I returned home to a rebel who lost his leg over, and to think two words: multiple sclerosis.
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| At 16 years old and lived in the Calle Antonio Caso, in the heart of Mexico City. |
Years later, the leg called a cane for support, but I gave him too few hours of exercise in cool. Some mornings, at dawn, we got into my leg and I went to the YMCA pool is on the army in the District Federal. And we did so well that sometimes swim we left forgotten in the shower rod.
then and that was not enough.
I had some falls, it was more clumsy and slow.
I had some falls, it was more clumsy and slow.
For other reasons, and maybe once as a result of falling my chest hit the floor, I had four spontaneous pneumothorax over a period of 12 years, and multiple sclerosis.
A pneumothorax is the 'puncture' the lung, that bag of oxygen that feeds our blood is deflated and squashed without allowing the inlet or outlet. With only one lung, breathing in the middle of normal, emergency-took me four times, and the doctors inflated my lung again.
After my fourth pneumothorax over the slow recovery that I had 21 days in hospital, appeared in my daily life a walking brace. The 21 days in bed my legs helped lose condition.
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| In the veterinary clinic, circa 2000. |
My gait was slow and difficult, needed help for many things but still working in and out with friends, until someone had the idea of \u200b\u200bgiving me a wheelchair for I would be easier to get from home to the clinic, but I never use my own chair. My hands were not strong enough, so someone had to push.
Then one day I have no good location in memory, and no more went to work. My instrumental, my desk, my team of veterinary surgeons were saved and over the years failed to be there: some sold, others were old, the cages of the dogs were in the hands of friends and now I only keep my bag on top of a closet.
I retired veterinarian, and 6 years ago I was reborn.
Ana Silvia Garcia Barajas
I retired veterinarian, and 6 years ago I was reborn.
Portrait of Ana SilviaHéctor Manuel García Caballerozootecnista Veterinarians, disabled personDate of birth: Oct. 18, 1963Birthplace: Mexico, DF
Member of the Mexican Association of Multiple SclerosisIAP Vice ZOE Multiple Sclerosis Association of MorelosExecutive Committee Member, International Committee of People with MS (PwMSIC)
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"Hector met online. It was mid-2005.
He, on his disability, only activity was to connect to the web almost all day. At some point, read an excerpt from my personal blog and decided to write, but the message resulted in an unintelligible phrase because the quality of dictation program was deficient.
I was intrigued that a professional of 41 years old, single and see no evil, seek contact on the Internet.
I had given just curious to experience the cyber-romance as a mode of entertainment, and no risk to respond guessed the riddle of the veterinarian.
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| 2010. |
After phone calls followed and finally the personal encounter, but I warned my cibernovio he had "wood" no intentions of being a woman-nurse carer.
After two months of that post / bait, came to live with me in Cuernavaca.
Today, spent nearly 6 years, are married. I learned to inject. We attend their basic needs. I lost my fear of what it sounded terrible 'cleansing the bowels', until I'm ready to place a catheter for intermittent catheterization if necessary, on the advice of the neurologist will have at hand a device for home oxygen by the risk that my husband breathing problems again after he has had four pneumothorax.
I'm the one who had no blood to be caretaker / nurse. I'm the one who had no intention of a formal relationship.
I became all that and more. I am the secretary of my husband, I'm your operator, his assistant, his driver, his cook, his consciousness, his watch, the more convinced admirer and follower. "
Ana Silvia Barajas Garcia, February 2011
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THIS IS A TEXT THAT WROTE ANA TO EXPRESS HOW YOUR LIFE SEEN .
Can you love without being happy can one be happy without love;
but love and happiness is something prodigious.
but love and happiness is something prodigious.
I discovered that life is not counted in years, even days, sometimes words can not quantify the balance of who we are and where we believe we are now.
I count my life with laughter and sunrises in tears even. Tears sometimes tired and sometimes impotence, but most are the ones that are released when the emotions are swirling, when the voice refuses to take shape because happiness is so great.
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| a child is always smiling, very loving and happy. We tried to educate with a deep respect for the rights of others and their sensitivity helps a lot. |
'm caretaker of angels: a boy who at age 8 can not read because of an alteration of language, and a man who 28 years ago was to change his body and had to give up what people call "life." Left many things because of multiple sclerosis (MS), perhaps the hardest part was separated from his career as a doctor of animals. What is a soul winning stronger now gives me support and courage to be a mom, to be a wife and to serve others.
I have a beautiful son, my Heavenly Father decided to put in my hands, and I have a unique husband, wise and patient, wonderful example of love of life, a survivor and strong man who since 1983, quietly and constant a harrowing disease has robbed the movement and forces him to stay in one piece when someone does not help, but whose spirit, heart and are the brightest light I have ever known.
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| Mariano at a school activity to promote the universal values \u200b\u200b . |
Having seen the death of my two babies born prematurely between 1992 and 2001, Mariano was my angel and I learned that even I did not know smile. My son changed my life and filled with purity and hope. Then in 2005, Hector came into my life, my second husband who can not move from the neck God down and it gives me the opportunity to learn what is service and delivery but especially love, that is not afraid, who always trusts and hopes all things, who gives everything.
Hector and I since 2007 we are building a partnership to help people with MS and their families in an attempt to contribute to a better quality of life and emotional support. In the Mexican federation of associations of EM (EMMEX AC), I am responsible for media, and Hector was appointed since 2008, Mexico's representative to the International Committee of People with MS (PwMSIC by its acronym in English) based in London, recently extended their period of service 2015, as part of the Executive Committee.
I, therefore, besides being president of our organization and manage support for vulnerable people and not just with MS, do outreach and guidance on multiple sclerosis, and contributed to web site translation the first World of Multiple Sclerosis (May 27, 2009). In addition, manage, compose and design the contents of three spaces dedicated to MS Internet: the personal blog of my husband, the blog of the Mexican Federation and the page of our own association. Personally, I do the same in blogs myself and my son.
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| Ana Silvia, Maria and Hector. October 2008. |
'm caregiver for my husband and that is not more than expected of a wife. He can not even drink water by itself and depends on my attentions to remain stable and active. But my goal is to not treat it as sick and I have decided that there is no reason to stop in bed or at home: he attends to all parties involved in all activities and develop professionally with my help.
Our conviction to do selfless work is the way to thank God for giving us the support and love of our families, friends, community and life itself.
I thought I had lived and learned, who had had both successes and mistakes. And then divorced after seven years of my first marriage to a great man, started what it really is my life after my 30 years in 2000 came to life an intrinsic desire to help and gave birth to Zoe, my organization that first stage was only aid and service manager for service projects and ecological and cultural.
Today, Zoe is name, is called "ZOE FOR LOVE" and is dedicated to MS, since our life with multiple sclerosis what we do in everyday life.
Ana Silvia Garcia Barajas
Cuernavaca, Mor., February 23, 2011 .
Ana Silvia Barajas Vargas
Editor, writer and freelance designer
Birthday December 30, 1965
Birthplace Cuernavaca, Morelos, Mexico
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| Mariano participating in the "Mission: Mains propres" global campaign against corruption. |
inactive, Ana Silvia in his teenage years, thought to have a vocation to serve as a teacher of children with disabilities and learning difficulties, to 19 years focused its activity to that area and even enrolled in college to specialize, but in a matching exercise defined his personality and dedication were not ideal for this task, and then changed the study area.
entered the school of journalism, "Carlos Septien Garcia" Mexico City, and from the sophomore entered the diarism in his hometown of Cuernavaca. Later would study communication sciences at the Tecnologico de Monterrey, and around age 30 joined Language and Literature at the Universidad Nacional Autonoma de Mexico.
And although none of these universities obtained a degree, he worked for 20 years in media and press departments, outreach and image, as a proofreader, reporter, editor and publisher, until in 2002 he left office work to live her motherhood, and then served part time as a professor at the Universidad del Valle Cuernavaca, and as a copyeditor at the agency "creative synergy."
Subsequently, a year after joining his life to Héctor García Caballero, Ana in 2006 retired from the professional field to devote himself full time to care for her husband, who is quadriplegic because of secondary progressive multiple sclerosis who has for nearly 3 decades.
Ana Silvia is the sole carer of Hector, who has a handicap of 9.0 (maximum disability and bedridden, it retains the mobility of the arms, but can eat and talk) according to EDSS neurological rating scales.
Ana Silvia's family consists of three people: his son Mariano 8 years old -47 years Hector her husband, and herself. Living alone on the outskirts of Cuernavaca in a department of social interest they receive from family and have only the help of a service person does one or two general cleaning times a week. Until a year ago, conditions were more affordable housing but a lack of resources prevented them from continuing to pay the rent of a single house in the heart of Cuernavaca and so moved.
Living expenses are cu ered with the help of the family of two, with personal donations from friends and supporters to his cause, and a small amount of money obtained by selling the clothes that Ana Silvia done from home. Hector has nearly 10 years without receiving any fees since he could no longer perform the job as a veterinary surgeon, Ana Silvia 5 years is dedicated to caring for her husband, home and work for the cause of MS, which is altruistic.
The situation that enveloped this family for the physical condition of Hector, which requires constant care and difficulties involved in the transfer and mobilization of him, led the couple to devise ways to be helpful and active. The first step was to structure the partnership would support other people with multiple sclerosis in the state of Morelos.
ZOE born in 2000 at the initiative and under the direction of Ana Silvia Barajas, for human development projects in coordination with other associations Cuernavaca local. Zoe's work, however, gradually took pause because the leaders involved were integrated into other activities, some outside of Mexico.
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| testimonial Talk about your experiences as a caregiver, at the National Institute of Neurology, the World Day of MS 2010. |
Zoe's awakening came in 2007, when Hector made public his desire to forge an association of multiple sclerosis in Cuernavaca in gratitude and appreciating the benefits that he experienced to belong to the Mexican Association of Multiple Sclerosis (AMEM) in Tlalnepantla, Mexico State. The achievements of Ms. Lourdes Ituarte, founder and president of AMEM, have always been a model for Hector, and was inspired to dedicate the work of Zoe to Multiple Sclerosis.
knew the existence of the body which brings together associations of MS in Mexico, EMMEX (Multiple Sclerosis Mexico AC) and asked to join the network to link synergies.
Ana Silvia has been in the service of their own association, the federation EMMEX and, of course, her husband, their abilities to dissemination and social communication, and experience in public relations, planning and logistics, as well as the development of operational programs.
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| ZOE Association of Morelos, who attended the World Day event EM 2010. |
The satisfactions have been many.
Staying active has kept emotionally healthy and not only on the condition of Hector have been improvements, but even in Ana Silvia, who was "rust" professional capacity and skills, have the option to write, create, communicate, much has improved self-esteem.
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| May 26, 2010 |
